1.
Bärkås, Annika, et al.
(author)
Analysis of Voluntary User Feedback of the Swedish National PAEHR Service
2019
In: MEDINFO 2019. - : IOS Press. - 9781643680033 - 9781643680026 ; 264, s. 1126-1130
Conference paper (peer-reviewed) abstract
"Journalen" is a patient accessible electronic health record (PAEHR) and the national eHealth service for Sweden's citizens to gain access to their EHR. The Swedish national eHealth organization Inera, responsible for Journalen, created an inbox to receive voluntary user feedback about Journalen in order to improve the service from the user perspective. Based on voluntary user feedback via email. This study explored patients' experiences of using the national eHealth service and identified pros and cons. A mixed method content analysis was performed. In total, 1084 emails from 2016-2017 have been analyzed. 9 categories were identified, the most frequent ones related to questions about why some information was not accessible (due to regional differencies), feedback (including only positive or negative comments as well as constructive improvement suggestions), and emails about errors that user found in their record. These data can be successfully used to continuously improve an already implemented eHealth service.
2.
Hägglund, Maria, Lektor, 1975-, et al.
(author)
Mobile Access and Adoption of the Swedish National Patient Portal
2020
In: Integrated Citizen Centered Digital Health and Social Care. - : IOS Press. - 9781643681443 - 9781643681450 ; 275, s. 82-86
Conference paper (peer-reviewed) abstract
Patient portals are used as a means to facilitate communication, performing administrative tasks, or accessing one's health record. In a retrospective analysis of real-world data from the Swedish National Patient Portal 1177.se, we describe the rate of adoption over time, as well as how patterns of device usage have changed over time. In Jan 2013, 53% of all visits were made from a computer, and 38% from a mobile phone. By June 2020, 77% of all visits were made from a mobile phone and only 20% from a computer. These results underline the importance of designing responsive patient portals that allow patients to use any device without losing functionality or usability.
3.
Hägglund, Maria, Lektor, 1975-, et al.
(author)
Patients’ access to health records
2019
In: The BMJ. - : BMJ. - 1756-1833 .- 0959-8138. ; 367
Journal article (other academic/artistic) abstract
Patients and clinicians are equally frustrated by the slow pace of changeThe international movement pushing to increase transparency by giving patients easy access to their health information parallels a broader shift in healthcare towards increased patient empowerment and participation. In the United States, the philanthropic OpenNotes initiative works to increase transparency by encouraging healthcare organisations to provide patients with access to notes in their electronic health record. It began in 2010 as a pilot that included 105 volunteer primary care providers and their 19 000 patients and has since spread throughout the US, with more than 200 organisations offering roughly 41 million patients access to their clinical notes. In Sweden, the first region-wide implementation of patient access to electronic health records was in 2012, more than 10 years after the first pilot study. All 21 Swedish regions have now offered this e-service through a national patient portal that integrates with all electronic health record systems currently used in Sweden. More than 3 million people (>30% of the population) had accessed their records online by August 2019, and more than 2 million logins occur each month.Similar patient accessible electronic record systems are implemented in other countries, though different strategies and approaches have influenced uptake and impact. Progress has been slow because of legal constraints, technical challenges, and concerns or resistance among healthcare professionals. Low rates of adoption among patients have also been a problem in some areas. Nonetheless, research evidence reports positive outcomes among patients accessing their records, and the concerns expressed by healthcare professionals have not been realised. Patients who read their notes report understanding their care plans better, feeling more in control of their care, doing a better job taking their medications, improved communication with and trust in their clinicians, and improved patient safety.
4.
Hägglund, Maria, Lektor, 1975-, et al.
(author)
Personalized Communication : People with Hearing Loss' Experiences of Using a National Patient Portal
2020
In: Digital Personalized Health and Medicine. - : IOS Press. - 9781643680828 - 9781643680835 ; 270, s. 1031-1035
Conference paper (peer-reviewed) abstract
Patient portals are used as a means to facilitate communication, performing administrative tasks, or accessing one's health record. A qualitative study was therefore performed to understand how people with hearing loss experience using the Swedish national patient portal 1177.se and the patient accessible electronic health record Journalen. Data was collected through focus groups and individual interviews. Ten persons with varying degree of hearing loss, age and years of using a hearing aid participated. The data was analyzed through thematic content analysis and three themes emerged; access to written information, patient-created information and personalized communication. Although the study is limited in size, we believe that important lessons can be learned regarding the needs for personalized communication, including access to written information.
5.
6.
Hägglund, Maria, Lektor, 1975-, et al.
(author)
Supporting citizen-centered care for seniors - experiences from two Swedish research projects
2012
In: 2012 25th IEEE International Symposium on Computer-Based Medical Systems (CBMS). - Rome, Italy : IEEE conference proceedings. - 9781467320511 ; , s. 1-6
Conference paper (peer-reviewed) abstract
The development of information and communication technology (ICT) for citizen-centered care requires insight into concrete problems in care processes as well as an understanding of the goals and values that should guide these. In this retrospective study we return to results from two research projects focusing on the needs of senior citizens and stroke patients. We describe the intersections between health care services, social care services and private services, and analyze these with focus on the needs of independence, continuity and participation. The current state of ICT in relation to the identified needs is also addressed. In conclusion, an increasing number of solutions are available to support senior citizens in different parts of their lives, yet they remain isolated and have limited impact. In order to harness value for senior citizens, it is imperative to continue with multidisciplinary research focusing on socio-technical aspects; addressing technological, organizational, legal and business-related aspects.
7.
Scandurra, Isabella, 1973-, et al.
(author)
Application of the Multi-disciplinary Thematic Seminar Method in two Homecare Cases : A Comparative Study
2008
In: EHealth Beyond the Horizon – Get IT There. - Amsterdam : IOS Press. - 9781586038649 - 9781607503330 ; 136, s. 597-602
Conference paper (peer-reviewed) abstract
A significant problem with current health information technologies is that they poorly support collaborative work of healthcare professionals, sometimes leading to a fragmentation of workflow and disruption of healthcare processes. Objective: This paper presents two homecare cases, both applying multi-disciplinary thematic seminars (MdTS) as a collaborative method for user needs elicitation and requirements specification. Methods: This study describes the MdTS application to elicit user needs from different perspectives to coincide with collaborative professions' work practices in two cases. Results: Despite different objectives, the two cases validated that MdTS emphasized the "points of intersection" in cooperative work. Different user groups with similar, yet distinct needs reached a common understanding of the entire work process, agreed upon requirements and participated in the design of prototypes supporting cooperative work. Conclusion: MdTS was applicable in both exploratory and normative studies aiming to elicit the specific requirements in a cooperative environment.
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